Purpose of Fund

The EML (Evan Michael Luebbe) Fund has been set up by me, Pamela Rasey, Evan’s aunt and Tammy’s identical twin sister. The purpose of this site is to provide support for the Luebbe family as they enter into this new chapter of their lives.

The EML Fund provides a means to directly contribute to FA research and serves as a way to help relieve some of the family’s current and future financial needs. The physicians involved in Evan’s medical care range from cardiologists, neurologists, physical therapists, occupational therapists, orthopedics and genetic counselors.

All donations will go directly to FARA (Friedreich’s Ataxia Research Alliance) or to the Luebbe family, depending on your specifications. FARA does not have any overhead costs associated with the organization. 100% of all donations to FARA go towards research efforts.

Quick Facts :

  • The fund was initiated November 20, 2004.
  • The EML Fund is a way to relieve some of the family’s costs and provide a financial cushion over time.
  • Offers a way to directly contribute to FA research.
  • Fund administration is done by 5th/3rd Bank, based in Cincinnati, Ohio.
  • All money raised goes directly to the Luebbe’s or to FARA, as the donor wishes/designates.

Find out Ways to Contribute!